Saturday, January 27, 2018

PUBLICATION OF PAPER: CONCERNS OF PARENTS OF PWIDDs – A MODEL OF EMPOWERMENT FOR INCLUSION

Dear All

The processes of sharing and disseminating through various forums in general and publication in Journals in particular have been continued. In this process another paper has been published in the UGC approved national Journal known as DESH VIKAS. Some of the details of the same paper were presented below as:  
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CONCERNS OF PARENTS OF PWIDDs – A MODEL OF
EMPOWERMENT FOR INCLUSION

Lakshmi Narayana N
Mentor,
Geo Rehabilitation Centre, Hyderabad.
Email ID: grcnln@gmail.com

ABSTRACT

Parents of the children with special needs are the most affected and worried about their child’s growth, development and future. Among the disability population, Persons with Intellectual and Developmental Disabilities are the most marginalized including isolation from the community. Due to various reasons the disability population is facing several challenges and affects the dynamics of the family, community and the Nation. The parents are more depressed in general and particularly in the rural villages and forced to search for better alternatives to cater the needs of their children. The SWOT analysis reflects several challenges of parents and opportunities as a solution with empowerment. Among the challenges, parents are more concerned with “what will happen to the child after us?” At the same time, several opportunities exist to transform these challenges into strengths with matching solutions to develop accessible, empowered, healthy and inclusive environments and thus to enhance the quality of life of the group. Parents have got specific roles to play in the whole process of empowering PWIDDs and to be the role models for other to follow. The Parents Associations and CSOs are working for PWIDDs with the support and guidance of Government. The suggested Integrated Home will work for the better living of PWIDDs and Senior Citizens with better connectivity and support under a single roof. The suggested strategies and interventions are simple, replicable, scalable, and sustainable matching to the dynamics of the given environment.        

Key Words: Vulnerability, Isolation, Training, Rehabilitation, Empowerment, Inclusion, Sustainability, Quality of Life. 

Statement of the Problem

The parents of the Persons with Intellectual and Developmental Disabilities (PWIDDs) are more worried about their child’s development, better living and to get a solution for their concern that “what will happen to the child after us?”  

Parents / PWIDDs: Parents are more worried with the concern that “what will happen to the child after us?” and look for better home to stay during their life and even when they are no more. In majority of the cases PWIDDs needs the attention, affection and support of elder persons who can stay with them. Managing home with PWIDDs alone will have several challenges and filling such gaps is very problematic.  


Senior Citizens / Homeless: On the other side, the elder persons who are homeless or isolated from the family members (both male and female), and who are with home but always feel isolated look for some younger people to stay and share like an extended family.    

 Recommendations

The concerns of the Parents and PWIDDs are more vulnerable and the recommendations suggested include:

1.  To strengthen PAs and CSOs working for PWIDDs with guidance, mentorship, and matching resources.
2.    To create spaces for PWIDDs at all the levels with effective service delivery systems with accessible technological connectivity.
3.   To develop human resources in special education with priority for PAs and CSOs to run the courses / programmes.
4.      To support PWIDDs for better employment and income generation programmes including micro entrepreneurship.
5.  To develop integrated homes by PAs and CSOs with the support and guidance of Government (Central and State).         

MODEL:

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Looking forward ...

With thanks