dEAR aLL
In continuation to our issues and challenges, another has been added in terms of clinical trails made on the human. One such discussion has been brought out in the Down to Earth. The comments made on this key issue are as follows:
.................................................................................
Dear Author /Editor
Congratulations for bringing such key issue (Ethics on trial, 1-15th June 2011 DTE)before the stakeholders.Clinical trial on the human beings should be transparent by way of:
@ Total documentary evidence on the use and impact of
drugs,
@ Should inform the volunteers about the cause and
consequence of drugs used both on short and long
terms problems,
@ Clinical trial should not be considered as a
business but use it for the human health and
development,
@ No volunteer should be forced and poverty or
vulnerability should not be exploited and it should
be with full acceptance,
@ Temporary monetary needs should not be compromised
the after effects on health and physical structure
@ Volunteer should be explained all there aspects in
the presence of their family members not the
agents and
@ Matching insurance both for health and life should
be arranged before the agreement.
Hope, these measures will resolve the present issue and help to do the process of clinical trial in an transparent and healthy environment which is acceptable to all the stakeholders.
..............................................................................
Looking forward for better reflections and reactions ..
with thanks
Saturday, June 18, 2011
Wednesday, June 15, 2011
Flouride problem in Guttavarepalle village, Madanapalle, Andhra Pradesh
Der All
Congratulations to Priya Desai for bringing such important issue of the community at Guttavarepalle, Madanapalle area.
Some of the important remarks and suggestions includes as:
Stage 1: In this case, the issue or problem is identified that higher concentration of Flouride both in the ground water and surface water. The source of issue is from the ground water and its extensive use for the agriculture is spread over the surface and further into the surface water.
Stage 2: Three approaches were attempted to bring down the flouride level up to permissible limit of 1.5ppm and majorly the same could not be achieved in spite of higher cost of filter and process.
Stage 3: As an alternative, tried to store the water on the surface tanks by way of suitable rainwater harvesting process. Due to less or no rains, the same could not be continued except using them as storage tanks for ground water.
Then, under these circumstances what to do next to lower the concentration of flouride and further minimize its cause and consequences on health, disability, environment and its dynamics with other components of developmental activities. Certainly it works as a barrier for working towards the holistic development of the people and area with sustainability and quality.
Stage 4: Development of watersheds and injection wells helps to recharge and enhance the ground water potential. This certainly helps for diluting the concentration of flouride. This is a long term solution with minimum cost and management.
Hope stage 4 can help to minimize the flouride concentration and its further impact on health and disability. I will be happy to add more on this critical and important issue of the people and area.
More details on this subject can be seen at: http://www.indiawaterportal.org/post/17950
Looking forward to get better solutions....
Congratulations to Priya Desai for bringing such important issue of the community at Guttavarepalle, Madanapalle area.
Some of the important remarks and suggestions includes as:
Stage 1: In this case, the issue or problem is identified that higher concentration of Flouride both in the ground water and surface water. The source of issue is from the ground water and its extensive use for the agriculture is spread over the surface and further into the surface water.
Stage 2: Three approaches were attempted to bring down the flouride level up to permissible limit of 1.5ppm and majorly the same could not be achieved in spite of higher cost of filter and process.
Stage 3: As an alternative, tried to store the water on the surface tanks by way of suitable rainwater harvesting process. Due to less or no rains, the same could not be continued except using them as storage tanks for ground water.
Then, under these circumstances what to do next to lower the concentration of flouride and further minimize its cause and consequences on health, disability, environment and its dynamics with other components of developmental activities. Certainly it works as a barrier for working towards the holistic development of the people and area with sustainability and quality.
Stage 4: Development of watersheds and injection wells helps to recharge and enhance the ground water potential. This certainly helps for diluting the concentration of flouride. This is a long term solution with minimum cost and management.
Hope stage 4 can help to minimize the flouride concentration and its further impact on health and disability. I will be happy to add more on this critical and important issue of the people and area.
More details on this subject can be seen at: http://www.indiawaterportal.org/post/17950
Looking forward to get better solutions....
Sunday, June 5, 2011
WHAT WILL HAPPEN TO THE CHILD AFTER US? - A QUESTION FROM THE PARENTS OF PERSONS WITH MENTAL RETARDATION
Dear All
It is the concern of every parent that their children should live in the community with dignity and respect with better social security. Accordingly, all the parents will provide necessary support for health,, education, employment and social status. This process gives satisfaction and belief that their children will lead better living during their life span and after that also.
In the case of parents of children with disability in general and particularly with mental retardation, the concern and process is more complex. This puts the parents under pressure to create environment both during their life span and after them. There was no specific answer till last year.
During 2011, The National Trust Came our with a novel scheme known as ASMITA. This is a life insurance which provides support and security on life cycle basis. This scheme is applicable for the persons with mental retardation, autism, cerebral palsy and multiple disabilities which are notified in the National Trust Act. On behalf of these four categories of persons, their parents, siblings, friends or NGOs can take the policy. In the event of death, the benefit is Rs.10 L and they will be under the care of National Trust on life cycle basis. This scheme is very good and several parents got motivated and are willing to join in this scheme. More details of the scheme can be seen at: www.thenationaltrust.in
I am in the process of creating awareness among the authorities, parents, PWDs, NGOs, PAs and other stakeholders and making arrangements to enroll into the scheme.
Looking forward to create better awareness and enrollment for the benefit of parents and their children.
All the best
It is the concern of every parent that their children should live in the community with dignity and respect with better social security. Accordingly, all the parents will provide necessary support for health,, education, employment and social status. This process gives satisfaction and belief that their children will lead better living during their life span and after that also.
In the case of parents of children with disability in general and particularly with mental retardation, the concern and process is more complex. This puts the parents under pressure to create environment both during their life span and after them. There was no specific answer till last year.
During 2011, The National Trust Came our with a novel scheme known as ASMITA. This is a life insurance which provides support and security on life cycle basis. This scheme is applicable for the persons with mental retardation, autism, cerebral palsy and multiple disabilities which are notified in the National Trust Act. On behalf of these four categories of persons, their parents, siblings, friends or NGOs can take the policy. In the event of death, the benefit is Rs.10 L and they will be under the care of National Trust on life cycle basis. This scheme is very good and several parents got motivated and are willing to join in this scheme. More details of the scheme can be seen at: www.thenationaltrust.in
I am in the process of creating awareness among the authorities, parents, PWDs, NGOs, PAs and other stakeholders and making arrangements to enroll into the scheme.
Looking forward to create better awareness and enrollment for the benefit of parents and their children.
All the best
DISABILITY, EDUCATION & EMPLOYMENT
Dear All
In the present technological and highly competitive environment, highly talented normal people are facing several challenges in getting education and some employment which may not match for their qualification. In this situation, imagination of the position of persons with disability in general and mental retardation is very critical and complex. In view of the right based acts and policies, PWDs have got the right to live in the community with respect & dignity on equal basis.
Understanding the need and demand, there is a scope and need to make a study in this direction. This can be taken up as a project work at post graduation level with matching check up at grass root level. I am in the process of obtaining the data and opinions while meeting the parents, PWDs and other stakeholders.
Looking forward for reflections and interactions.
All the best
In the present technological and highly competitive environment, highly talented normal people are facing several challenges in getting education and some employment which may not match for their qualification. In this situation, imagination of the position of persons with disability in general and mental retardation is very critical and complex. In view of the right based acts and policies, PWDs have got the right to live in the community with respect & dignity on equal basis.
Understanding the need and demand, there is a scope and need to make a study in this direction. This can be taken up as a project work at post graduation level with matching check up at grass root level. I am in the process of obtaining the data and opinions while meeting the parents, PWDs and other stakeholders.
Looking forward for reflections and interactions.
All the best
Wednesday, June 1, 2011
EMPOWERMENT OF PARENTS OF PERSONS WITH MENTAL RETARDATION ASOCIATED WITH MEPMA (IKP URBAN), ANDHRA PRADESH.
Dear All
In continuation to the efforts made in the disability area for all types of disabilities in general and particular to the one with mental retardation and associated disabilities,Mission for Elimination of Poverty in Municipal Areas (MEPMA) also known as Indira Kranthi Pathakam (IKP Urban)is doing commendable work in this direction.
Knowing the challenges, skills and needs of these vulnerable groups, MEPMA started developing need based strategies and interventions. One such major activity is to link up these groups with the existing National Federations working for the empowerment of persons with mental retardation and other associated disabilities. At present PARIVAAR is the existing federation working i this direction.
To move forward, the prgoarmme has been decided to hold One Day Workshop at District level at MEPMA (IKP Urban). I have got the opportunity to be the State Resource Person for conducting such workshops in 13 districts. The approved programme is as follows:
25th May 2011: Anantapur
26th May 2011: Chittoor / Tirupati
27th May 2011: Kadapa
28th May 2011: Kurnool
30th May 2011: Mahaboobnagar
31st May 2011: Hyderabad
1st June 2011: Ranga Reddy / Tandur
3rd June 2011: Medak / Sanga Reddy
4th June 2011: Nalgonda
6th June 2011: Warangal
13th June 2011: Karimnagar
14th June 2011: Nizamabad &
15th June 2011: Adilabad.
The main objective is to create awareness among the Office Bearers of the Parents' Associations and linking them with the PARIVAAR.
The agenda is as follows:
Brief on:
o Disability Acts
o Schemes & Benefits
o Role of Parents
o Challenges
o Moving towards Right Based Models
o Need of networking and associations
PARIVAAR
• Vision & Mission
• Objectives & Role
• Activities & Projects
• Membership, requirements
• Benefits
• Opportunities
• Importance of Regional and National Parents’ Meets - experiences
Interactive Session with the participants
I will be posting the highlights and other updates after completing the workshops planned as above.
Hope to get better reflections from you all...
with thanks
In continuation to the efforts made in the disability area for all types of disabilities in general and particular to the one with mental retardation and associated disabilities,Mission for Elimination of Poverty in Municipal Areas (MEPMA) also known as Indira Kranthi Pathakam (IKP Urban)is doing commendable work in this direction.
Knowing the challenges, skills and needs of these vulnerable groups, MEPMA started developing need based strategies and interventions. One such major activity is to link up these groups with the existing National Federations working for the empowerment of persons with mental retardation and other associated disabilities. At present PARIVAAR is the existing federation working i this direction.
To move forward, the prgoarmme has been decided to hold One Day Workshop at District level at MEPMA (IKP Urban). I have got the opportunity to be the State Resource Person for conducting such workshops in 13 districts. The approved programme is as follows:
25th May 2011: Anantapur
26th May 2011: Chittoor / Tirupati
27th May 2011: Kadapa
28th May 2011: Kurnool
30th May 2011: Mahaboobnagar
31st May 2011: Hyderabad
1st June 2011: Ranga Reddy / Tandur
3rd June 2011: Medak / Sanga Reddy
4th June 2011: Nalgonda
6th June 2011: Warangal
13th June 2011: Karimnagar
14th June 2011: Nizamabad &
15th June 2011: Adilabad.
The main objective is to create awareness among the Office Bearers of the Parents' Associations and linking them with the PARIVAAR.
The agenda is as follows:
Brief on:
o Disability Acts
o Schemes & Benefits
o Role of Parents
o Challenges
o Moving towards Right Based Models
o Need of networking and associations
PARIVAAR
• Vision & Mission
• Objectives & Role
• Activities & Projects
• Membership, requirements
• Benefits
• Opportunities
• Importance of Regional and National Parents’ Meets - experiences
Interactive Session with the participants
I will be posting the highlights and other updates after completing the workshops planned as above.
Hope to get better reflections from you all...
with thanks
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